NPA's Family Advocacy Network (FAN) collaborates with our partners at the NICU Parent Network to bring you a quarterly webinar series on topics of interest to NICU family advocates and providers. 

Our most recent webinar:


    • Understand the hidden costs and barriers associated with a baby's NICU stay and transition home
    • Identify the role NICU support organizations can play in overcoming these barriers
    • Build awareness of some fundamental resources available to NICU babies and families


In our most recent webinar we spoke with: 

    • Patti Bridges MSW, LCSW  

NICU Social Worker

    • Michelle Valiukenas
NICU Family Advocate

about some of the costs associated with a NICU stay.

2020 Webinar Schedule:




    • Supporting Families in Grief for Pregnancy and Infant Loss Awareness Month

Webinars on our Interdisciplinary Recommendations

for the Psychosocial Support of NICU Parents

Please see our free NPN + NPA global webinar series entitled One World. One Community. Many Voices.  honoring  the work of NICU Parent Leaders and providers around the world.

Past Webinars

The inaugural webinar Understanding the Basic Components of Trauma-Informed Care with Kara Wahlin, LMFT of NICU Healing was hosted in March 2016. 

Our second webinar was A Roadmap for Improving Your NICUwhere Sue Hall, MD & Kristy Love, a parent support program leader,  illustrated how to use the NPA's Interdisciplinary Recommendations for Psychosocial Support of NICU Parents to effectively advocate for change at your hospital. 

Our third webinar was Is Baby Friendly Family Friendly? with Sara Mosher, RN, BSN, MHA of Patient+Family Care where we discussed how the Baby Friendly Hospital Initiative and upcoming guidance for NICUs impact perinatal care practices and affect the quality of care and support given to NICU babies and their families.

Resources from Sara's webinar:

In our webinar, Caring for the Caregiver: Self Care for Peer Mentors, we talked with Cheryl Milford, EdS. As a  NICU psychologist and developmental specialist, Cheryl has been at the leading edge of perinatal caregiving for the last 30 years. She shared her perspective on how we can best address our unique needs as parent leaders and peer mentors and helped us explore ways to provide meaningful support to families who are in crisis without compromising our own mental health and wellbeing.

Resources from Cheryl's webinar:


Voices of Prematurity - A special presentation in honor of Mother’s Day and Parents of Preemies Day. You’ll hear from Deb Discenza of Preemie World, Jennifer Driscoll of Lily’s Hope Foundation, Jenne Johns of Once Upon A Preemie, and Stacey Porter of The Tangerine Owl Project.

Our fifth webinar, Supporting Families & Legal Liabilities: Protecting Your Organization, was hosted by an expert panel of attorneys, Lisa Moore of The Moore Firm and Erin Whaley from Troutman Sanders. 

  • You’ve developed some incredible education materials for your families, is your content protected? 
  • You just want to help, why won’t the hospital let you start a support group? 
  • What is HIPAA anyway and what does it mean to you? 
  • Do you know what your volunteers are saying to families in crisis? 

We’ll answer these and many more questions on the topics of Intellectual Property & Healthcare Law.

This month we featured a unique panel discussion with authors Jennifer Degl, Ali Dunn, Dr. Sue Hall, Andy Male, and Jennifer Hentz Moyer.

Each author has transformed their personal experiences into literary works providing hope, healing & encouragement for parents and their children who have been affected by preterm birth.

Helping NICU Moms Discover Their Magic 

A baby in the NICU is one of the most daunting, confusing and overwhelming times for Mothers, but opportunity exists for learning and discovering strengths, skills and life lessons that arrive with our baby’s births.

In April 2018 Kasey Mathews, Author of Preemie: Lessons in Love, Life and Motherhood shared how NICU Parent Leaders who have walked this path, can share their journeys and guide moms on their own, equipping NICU mothers with skills and tools that enable them not just to survive the NICU, but thrive as a result.

We celebrated International Kangaroo Care Awareness Day with the fantastically informative webinar from Dr. Raylene Phillips, Skin-to-Skin Contact After Birth: So Many Reasons Why It Matters

How a baby is welcomed into the world matters. There is much research-based evidence to support the importance of keeping mothers and newborns together. Helping parents and babies connect through skin-to-skin contact is worth the effort needed to make it happen.

In September we explored health and healthcare disparities in the NICU with Dr. JaNeen Cross of the National Association of Perinatal Social Workers (NAPSW)

In Understanding Health and Healthcare Disparities in the NICU, special focus was placed on socioeconomic, sociocultural, and geographical factors that influence access and availability of services and resources.

To celebrate Prematurity Awareness Month we presented a series of webinars - One World. One Community. Many Voices. Each week we spoke to parent advocates from a different part of the world, including: Ireland, The Gambia, Brazil, Canada, and AustraliaWe explored what is unique in caring for preterm infants in each country and what is universal to families' experience. 

  • Australia - Kylie Pussell, Miracle Babies Foundation
  • Canada - Fabiana Cacchini, Canadian Premature Babies Foundation
  • Brazil - Simone Rosito, Instituto Pequenos Grandes Guerreiros
  • The Gambia - Habi Bah, Little Survivor of the Gambia

  • Ireland - Mandy Daly, Irish Neonatal Health Alliance

Learn more.

September is NICU Awareness Month. Did you know that nearly half of all babies in the NICU are born at normal birthweight and are 37 weeks gestation or older? This is because advances in neonatal medicine mean that more infants can benefit from the specialized care that NICUs can offer. 

We know we need pay special attention to these families and their unique psychosocial needs. So we sat down to talk to:

  • Brittany Boet - Parent Advocate and Founder of Bryce's NICU Project.
  • Tiffany Willis, PsyD - NICU Psychologist
  • Vincent Smith - Neonatologist

Email for details on future webinars. 

Disclaimer: The views and opinions expressed in the webinar series are those of the participants and do not necessarily reflect the official policy or position of any employee, official, or volunteer of the National Perinatal Association.

Examples provided within these discussions are only examples and should be viewed as such.

Assumptions made from these conversations are not reflective of the position of any employee, official or volunteer of the National Perinatal Association.


Kristy Love, Executive Director

P.O. Box 392 Lonedell, MO 63060

© 2020 National Perinatal Association

Powered by Wild Apricot Membership Software